When Creed Pettit was a baby, his mom Sarah noticed her wasn’t hitting normal development milestones. For the first six months, “during the day, if he was in the sun, he was such a cool relaxed kid, but at the moment you would take him inside, or the sun would set, or it was a rainy day, he would start to cry and it would go on all day,” Sarah said.
Thinking that Creed had colic, Sarah and Creed’s father Ted would take him for drives at night, hoping to calm their fussy baby.
“Creed kept crying, except ‘when he would stare up at street lights, and then he was content,” Sarah said.
That’s when they started to think something was wrong with his vision.
The Pettits took their son to ophthalmologists, but in the fluorescent and bright lights of their offices, Creed’s eyes came back normal after examinations.
Creed’s visual acuity was actually 20/50 in one eye and 20/40 in the other, leading doctors to say that nothing was wrong with his vision and he was quite far from the 20/200 that is considered Legal Blindness.
But something wasn’t right and the Pettits knew it. Once Creed started walking, he would stretch his arms out in front of him and would trip over obvious obstacles that were in plain sight. Sarah says he was constantly running into chairs and sofas.
“The only way he knew he was somewhere was when he hit it,” Sarah said.
What Creed has is a rare genetic mutation that causes Leber’s congenital amaurosis, a condition that makes it impossible for him to see in anything but brilliant sunlight or brightly lit rooms. It affects nearly 2,000 people in the U.S. There is no cure for LCA, but a breakthrough treatment could give Creed and others like him a second chance at sight.
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